Keep an eye on this page for breaking news from Cancer Voices NSW. More detail in CVN Newsletters.
08/05/2018 — Patient and health sector feedback is still sought on a draft prostate cancer Position Statement created by the Royal Australian and New Zealand College of Radiologists’ (RANZCR) Faculty of Radiation Oncology.
The ‘Informed Decision Making in the Management of Localised Prostate Cancer – A Patient Focused Perspective’ statement advocates for men with prostate cancer to be fully informed about treatment options, including costs, before any decision is made about active treatment. It calls for true multidisciplinary, patient-centred care, supporting men to fully explore choices to allow each man to decide what is best for him.
In the vast majority of cases, consultation with both a radiation oncologist and a urologist prior to any decision being made, provides the optimal model of care.
Comments from all interested parties are encouraged and will be taken on board before final publication of the statement.
More information is available by clicking here. Comments must be submitted by Monday, May 14 2018.
All men with prostate cancer need to ensure that they have opinions for treatment from both a radiation oncologist as well as the surgeon who diagnoses the cancer. There is strong evidence now for radiation therapy being as effective as surgery in curing prostate cancer. Recent studies suggest that sexual and urinary side effects are better long term with radiation therapy compared to surgery. A referral to a radiation oncologist can be given by either the urologist or a General Practitioner. There is time to investigate the available information from experts before deciding on the treatment choice.
Prof. Ian R Gardener, the Principal Medical Advisor Department of Veterans’ Affairs, advises all men diagnosed with prostate cancer to obtain an independent second opinion from an appropriate specialist such as a radiation oncologist.
CV are supporting the campaign by RANZCR on the Federal Government Funding Cuts for Radiation Therapy Equipment.
CV supports this project to better understand insurance experiences of people living with health conditions.
To see Legal Aid’s words regarding the survey: http://www.legalaid.nsw.gov.au/about-us/news-and-media/general-news/taking-cover-we-want-to-hear-your-take-on-insurance.
To complete the survey, click here: https://qau1.au1.qualtrics.com/jfe/form/SV_bQM3IqMRIBCfToh.
Sally Crossing AM (1946-2016) — an inspiring tireless crusader and trailblazing pioneer for cancer advocacy at both state and national levels for the past 23 years.
Sally established and led Cancer Voices NSW (2000), convened Cancer Voices Australia and then the Australian Cancer Consumer Network (2014), and was friend and mentor to Cancer Voices SA (2007). Her contributions to research, policy and clinical practice in consumer involvement, as well as raising awareness of issues and improving the path for all people affected by cancer has been exceptional. Many people get cancer, but few have ‘raised a voice and made a difference’ so effectively. Rest in peace Sally. Thank you. You will be greatly missed.
From the Executive Teams of Cancer Voices Australia, Cancer Voices NSW, Cancer Voices SA
Cancer Voices has been invited to present this poster, which summarises the new CIR Evaluation Report, at three major cancer conferences this year. Click here to see it.
The coming federal election gives us a great opportunity to make sure our political leaders know the issues which are important to Australians with cancer and their families. Cancer Voices is conducting a survey to identify the major generic issues for people affected by cancer. We invite you to complete this survey and return it to us.
Cancer Voices has documented our CIR Program 2005-2015. For a summary of its history, process and achievements, see Cancer Consumer Involvement in Research – Celebrating Ten Years
At last we get the view of consumers into the debate on the value of cancer screening.
NSW Election 28 March 2015
Cancer Voices sent a list of questions to NSW political parties contesting this state election. Their replies can be found here.
We welcome the NSW Government’s 1 March commitment to upgrade rebates under the Isolated Patients’ Travel and Accommodation Scheme (IPTAAS), especially those for accommodation. However, travel assistance for clinical trials is still not supported.
We also welcome the great news what NSW public hospitals will no longer charge co-payment fees for chemotherapy drugs.
Both of these issues have been on our advocacy agenda for some time – its wonderful what a coming election can do!
Consumer Involvement in Research – Opportunity!
Consumers are invited to sign up for a short training course to equip you for the rewarding role of providing the consumer view to researchers as they develop their studies and projects for funding.
Contact the Cancer our partner the Council NSW via their website www.cancercouncil.com.au or by email to email@example.com for an Expression of Interest form. Graduates of the course will then be part of our CIR Register and may be offered places with requesting researchers. A great way to meaningfully contribute to cancer research!
2015 dates to be advised (Sydney). See 2014 flyer for more information.
Consumer Involvement in Research (CIR) Guides: Cancer Voices has released two new Guides – for the consumers it nominates to work with researchers and one for researchers themselves. These well-received Guides clarify roles and expectations for both parties.