Cancer Voices NSW
From CancerVoicesNSW
"Nothing about us without us"
Cancer Voices NSW provides the voice of people affected by cancer and is the peak coalition for NSW cancer consumer groups.
Founded in 2000, our purpose is to represent, and to act on, the needs and interests of people affected by cancer in our state and beyond, working in partnership with decision-makers. We focus on the areas of diagnosis, information, treatment, research, support and care, providing a consumer voice wherever cancer journey decisions are made.
Palliative Care Improvement Campaign 2011-2012
Our hugely successful 2011 campaign raised 23,000 signatures to a petition seeking Government action. A Debate in Parliament followed on 10 August, supported by the Premier, Minister for Health and the Shadow Minister for Health. Funding was almost immediatley restored to Northern Sydney palliative care services. Cancer Voices now has a seat on the Palliative Care Expert Advisory Group (PCEAG) which reports to the Minister for Health on 31 March about how to deliver the Minister's commitments to improve palliative care services state-wide.
Cancer Specialist Referral Directory - now online
Go to www.canrefer.org.au to see a full list of NSW cancer treatment teams which offer multidisciplinary care, with names ond contact details. For Cancer Voices NSW and people affected by cancer, this is the culmination of several years of advocacy. We collaborated with the Cancer Institute NSW to enable patients and their referring doctors to locate the most suitable and best qualified specialist treatment teams.
Celebrating Ten Years of Cancer Voices - Booklet now out!
A Decade of Success: Cancer Voices NSW 2000-1010 A record and discussion of our purpose, achievements, our people, activities; with reflections and comments from stakeholders, case studies and thougths about the next decade. CVN members will receive their free copy with the September newsletter. Copies are being sent to stakeholders, government, cancer care centres, clinical decision-makers, researchers, politicians and the media.
Why record our first 10 years? Perhaps even more importantly, the cancer consumer movement in Australia, which Cancer Voices NSW spearheaded, should be recorded. Others will benefit from understanding our history. We can share what we have learnt and apply it ourselves for the decades ahead. Academics and researchers will have a real-life case study of what works best in health consumer advocacy – and what does not!
Click here to get a PDF copy (6.9Mbyte download)
For more copies contact us at info@cancervoices.org.au
Membership and its Advantages
Voting members are NSW cancer support and advocacy groups. We also welcome individuals, carers, cancer care professionals and interested organisations as associate members.
Members receive a quarterly newsletter, can assist in identifying issues, setting priorities and prompting changes for the benefit of the 40,000 people diagnosed each year in NSW, and the many others living with it.
- Join Cancer Voices – membership is free.
Consumer Training
Consumer Advocacy Training
The Cancer Consumer Advocacy Training course offers skills and confidence for cancer consumers interested in being a consumer representative or advocate on behalf of Cancer Voices NSW. It is held several times a year, for two days (Friday and Saturday) in metropolitan and regional centres. This is an initiative of Cancer Voices NSW and is provided by The Cancer Council NSW. An expression of interest form for the course can be sent to you by contacting the Cancer Council on 02 9334 1850 or via email advocacy@nswcc.org.au.
'Courses in 2012' next will be 23 and 24 June (Sydney).
Consumer Research Training
Training for cancer consumers who are interested in influencing the direction of cancer research. Next course 31 Aug and 1 Sep 2012
Courses are held annually, in August or September.. Contact Cancer Council NSW (Tel) 02 9334 1854, or via website www.cancercouncil.com.au for Expression of Interest Form. Cancer Voices strongly recommends this course - it leads to our Consumer Involvement in Research Register and opportunities to have your say about research projects and priorities. 23-24 June 2012
Request a Consumer Representative on Your Decision-Making Committee
Application forms
Requesting a Consumer Representative for Your Group, Panel or Committee
To request a consumer representative for your organisation or group,
- Click HERE to complete the form and submit on-line; or
- Click and download the following form Consumer Representative Form
- Complete the Microsoft Word form and
- mail the completed form to info@cancervoices.org.au
Joining Cancer Voices (NSW)
To request membership of Cancer Voices, either as an organisational representative or as a sole member,
- Click HERE to complete the form and submit on-line; or
- please click and download the following form Membership Form.
- Complete the Microsoft Word form and
- mail the completed form to info@cancervoices.org.au
If you have any problems with any of the the online forms, please send an email to info@cancervoices.org.au detailing your problem so we can address your issue(s).
More about Cancer Voices NSW
To find out more about Cancer Voices NSW, use the navigation bar on the left. The Search box searches the whole site, including newsletters. This website is interactive (use disussion tab) so that you can let us know your issues, concerns and ideas, as well as join, contribute and find out about our advocay on behalf of people afected by cancer.
