Keep an eye on this page for breaking news from Cancer Voices NSW. More detail in CVN Newsletters.
Cancer Voices NSW has recently implemented a review of its Consumer Involvement in Research (CIR) Program. As part of the Review we are conducting a survey. Consumers and Researchers are being invited to complete the survey. The survey can also be completed by those who may have an interest in the Program but are not directly involved. Access survey here.
Note: Survey will be open till COB 26 October 2020
Cancer Australia (CA), Cancer Council Australia (CCA) and Dept of Health have produced a YouTube video for those affected by cancer to remind them that that clinicians and support services remain available and committed to cancer care and support during the COVID-19 pandemic. View here.
It is important to take messaging from the official health and government authorities and agencies. These include both the Australian and NSW Government websites which are updated daily along with Cancer Australia and Cancer Council Australia and NSW. Links can be found on Page 2 of our March Newsletter.
CV are supporting the campaign by RANZCR on the Federal Government Funding Cuts for Radiation Therapy Equipment.
CV supports this project to better understand insurance experiences of people living with health conditions.
To see Legal Aid’s words regarding the survey: http://www.legalaid.nsw.gov.au/about-us/news-and-media/general-news/taking-cover-we-want-to-hear-your-take-on-insurance.
To complete the survey, click here: https://qau1.au1.qualtrics.com/jfe/form/SV_bQM3IqMRIBCfToh.
Sally Crossing AM (1946-2016) — an inspiring tireless crusader and trailblazing pioneer for cancer advocacy at both state and national levels for the past 23 years.
Sally established and led Cancer Voices NSW (2000), convened Cancer Voices Australia and then the Australian Cancer Consumer Network (2014), and was friend and mentor to Cancer Voices SA (2007). Her contributions to research, policy and clinical practice in consumer involvement, as well as raising awareness of issues and improving the path for all people affected by cancer has been exceptional. Many people get cancer, but few have ‘raised a voice and made a difference’ so effectively. Rest in peace Sally. Thank you. You will be greatly missed.
From the Executive Teams of Cancer Voices Australia, Cancer Voices NSW, Cancer Voices SA
Cancer Voices has been invited to present this poster, which summarises the new CIR Evaluation Report, at three major cancer conferences this year. Click here to see it.
The coming federal election gives us a great opportunity to make sure our political leaders know the issues which are important to Australians with cancer and their families. Cancer Voices is conducting a survey to identify the major generic issues for people affected by cancer. We invite you to complete this survey and return it to us.
Cancer Voices has documented our CIR Program 2005-2015. For a summary of its history, process and achievements, see Cancer Consumer Involvement in Research – Celebrating Ten Years
At last we get the view of consumers into the debate on the value of cancer screening.
NSW Election 28 March 2015
Cancer Voices sent a list of questions to NSW political parties contesting this state election. Their replies can be found here.
We welcome the NSW Government’s 1 March commitment to upgrade rebates under the Isolated Patients’ Travel and Accommodation Scheme (IPTAAS), especially those for accommodation. However, travel assistance for clinical trials is still not supported.
We also welcome the great news what NSW public hospitals will no longer charge co-payment fees for chemotherapy drugs.
Both of these issues have been on our advocacy agenda for some time – its wonderful what a coming election can do!
Consumer Involvement in Research – Opportunity!
Consumers are invited to sign up for a short training course to equip you for the rewarding role of providing the consumer view to researchers as they develop their studies and projects for funding.
Contact the Cancer our partner the Council NSW via their website www.cancercouncil.com.au or by email to [email protected] for an Expression of Interest form. Graduates of the course will then be part of our CIR Register and may be offered places with requesting researchers. A great way to meaningfully contribute to cancer research!
Consumer Involvement in Research (CIR) Guides: Cancer Voices has released two new Guides – for the consumers it nominates to work with researchers and one for researchers themselves. These well-received Guides clarify roles and expectations for both parties.