ReConX – Building Researcher and Consumer Connections The need for better connections and communications between health and medical researchers and consumers has never been greater and was the focus of the recent full day ReConX workshop held at the University of Sydney on 4 April. Members from Cancer Voices NSW (CVN) joined consumers, researchers and…
Cancer Voices NSW has received the inaugural ‘Consumer Engagement in Cancer Research Award’, part of the 2023 NSW Premier’s Awards for Outstanding Cancer Research. (See link to the NSW Government media release below) Cancer Voices NSW (CVN) provides the independent voice of people affected by cancer in NSW and beyond. In the twenty-three years since…
The Sally Crossing AM Award for an Outstanding Outcome in Cancer Research is dedicated to the memory of the late Sally Crossing AM (1946-2016). Sally was a pioneer and tireless advocate for consumer involvement in cancer research. Cancer Council NSW and Cancer Voices NSW acknowledge the extraordinary support of the Belalberi Foundation and the Crossing…
The Sally Crossing AM Award for an Outstanding Outcome in Cancer Research is dedicated to the memory of the late Sally Crossing AM (1946-2016). Sally was a pioneer and tireless advocate for consumer involvement in cancer research. Cancer Council NSW and Cancer Voices NSW acknowledge the extraordinary support of the Belalberi Foundation and the Crossing…
CVN Portfolio Teams Cancer Voices NSW is undergoing some change and we want to bring you up to date. Following our strategic planning workshop in 2022, a number of key changes have been introduced including the establishment of five Portfolio Teams, designed to focus on key areas of Cancer Voices activity. These are: Marketing Membership…
Cancer Voices NSW AGM Cancer Voices NSW Annual General Meeting was held online for the third year on 22 March via Zoom. Whilst we miss meeting face to face, the online format enabled our regional EC members to attend, We thank them for taking the time to attend. CVN member Graeme Gherashe kindly fulfilled the…
The Sally Crossing AM Award for an Outstanding Outcome in Cancer Research is dedicated to the memory of the late Sally Crossing AM (1946-2016). Sally was a pioneer and tireless advocate for consumer involvement in cancer research. Cancer Council NSW and Cancer Voices NSW acknowledge the extraordinary support of the Belalberi Foundation and the Crossing…
VAD legislation update: federal government to legislate to allow the ACT and Northern Territory to introduce voluntary assisted dying The recently-elected federal government has indicated that, as part of its legislative program, it will seek to repeal the Euthanasia Laws Act (passed under the Howard Government in 1997) that prevents the ACT parliament and the…
Cancer survivors working with researchers help to save lives. Our dedicated team at Cancer Voices is committed to matching those with a personal experience of cancer (we call them Consumers) with a researcher. Our Consumers are trained in how they can be involved in cancer research projects, to comment on and participate in surveys, to…
CVN 2022 Strategic Workshop CVN has held its 2022 strategic workshop which comprised three separate two hour webinars – 11 and 25 February and 8 April. We are grateful for the guidance and direction provided by our facilitator, consultant Graeme Gherashe. Graeme continues to support us on a pro bono basis. Graeme continued to challenge…
LGBTIQ+ palliative and end-of-life care resources Specific resources for LGBTIQ+ people have been recently developed with the title Taking control: LGBTQ+ Toolkit for Palliative Care and End of Life Decisions. You can access the resources here https://www.acon.org.au/what-we-are-here-for/palliative-care-support/ The resources emphasise that: It’s best to start having end of life conversations before you need to, even if it…
NSW Government recognises diversity and inclusion in first ever LGBTIQ+ Health Strategy In an important development for our state, the NSW Government recently released the first-ever LGBTIQ+ (Lesbian, Gay, Bisexual, Transgender, Intersex and Queer) Health Strategy 2022-2027. The NSW LGBTIQ+ Health Strategy (the Strategy) marks a significant commitment in the history of the NSW health system. The…
Focus on travel and accommodation costs for cancer patients in NSW Cancer Council NSW, through its pre-budget submission to the NSW Government, recently urged it to improve support for cancer patients, particularly in relation to ‘access to care for those in rural and regional NSW and to support the emotional and financial wellbeing of people…
Federal election imminent: what commitments need to be made to help improve the lives of those affected by cancer? With the federal election to be held before the end of May this year, cancer and broader health organisations have been developing election ‘manifestos‘ or ‘platforms’ for presentation to federal politicians in the lead-up to the…
Cancer Voices involvement in the National Pancreatic Cancer Roadmap CVN member Gino Iori was nominated by Cancer Voices for the Cancer Australia Pancreatic Roadmap steering committee in late 2020. Gino brings a carer’s perspective to all his consumer representative work. His brother passed away from pancreatic cancer in 2011 and following CIR training in 2014…
National Pancreatic Roadmap launched The Australian Government has launched the National Pancreatic Cancer Roadmap (Roadmap) and has committed $20.3 million to support improved outcomes and survival for Australians affected by pancreatic cancer. The National Pancreatic Cancer Roadmap identifies 33 key priority areas and 60 strategies for collective action over the next five years to 2027.…
Cancer Voices NSW has a new Constitution, and Executive Committee Charter Cancer Voices NSW has a new Constitution following the unanimous decision at the Annual General Meeting on 25 February 2022. You can read the new Constitution here. New legislation for the operation of incorporated associations commenced in NSW in 2009 with the introduction of…